Posted by: johnnahood on: November 29, 2008
100 posts I can’t believe it! Anywho…I’m feeling pretty good in comparison to the past 8 months
) We are officially not doing chemo round 7 so here’s how the next couple months are shaping up
1. Still not released for work (bummer)…major setbacks on knee after the hospital stay and non movement so my docs won’t release until I’ve worked with PT enough to be able to sit without my leg being elevated and extended (also until #3 gets straightened out)…
2. PT starts December 11th (earliest we could get in)…3 times a week for at least 4 weeks then reevaluate.
3. Seeing and eye dr. on Wed (not a big box eye doctor…one who specializes in after effects of chemo)…my vision is messsssssssed up… and it’s not my prescription because it’s with or without my glasses…things just…disappear…I mean that literally…the other day I was looking at my brother and he had no left arm…AT ALL…the worst though is after about an hour on the computer, letters start to disappear from words and seeing as my employment skills are all not only computer related but computer dependent…well we have to figure out if it’s a temporary thing or what soooooo seeing Dr. Posegate on Wednesday and we’ll go from there…
4. We have decided that my skin problems are chemo after effects related (they sooooooo did not disclose all this “after affects” crap)…basically my skin is either soooo dry it’s like a sun burn that’s cracking or my skin is like leather for a day and then reallly peely…like my hands right now are trying to completely shed it’s skin…I was lotioning but it made it tons worse unless I could literally lotion my entire body every 15 minutes…bad news is due to #5 when the skin breaks it’s a major deal b/c the bleeding takes a LONG time to stop…even just a little bit
5. Coumadin is driving me insane…well actually a. remember to take it but more importantly b. the food restrictions are literally driving me nuts…well and the biweekly blood draws that bleed forever drive me nuts too
6. In addition still on 150 of lovenox so reallly really thin blood (due to blood clots in and near heart which apparently could take 3 months or more to dissolve even with reallly really thin blood…who knew???) anywho…complication right now with that…the site where I gave myself my shot on Tuesday is now as hard as a rock (literally) and the bruise is spreading like wildfire…I normally bruise from the shot but it’s usu. just a quarter size bruise and we’re done and I’ve NEVER had a hard lump before at the injection site…soooo I’m debating on the brave the ER or wait until my appt. on Monday…it hurts but…also worried that the (WARNING WARNING WARNING WARNING WARNING….GROSSNESS COMING UP SORRY) anywho also worried that the bloody water during my BM today had something to do with the lump and giant bruise on my stomach…usu. don’t have that much blood unless I’m on my period and well I don’t have one of those anymore…soooo yeah…trying to weigh my fear of being admitted to the hospital again with my safetly…it’s a toughy (seriously)…Since the 16 days in the hospital where THEY made me sicker than I was (and I was plenty sick enough) I seriously have a HUGE phobia about being admitted again…sigh
So I think that’s the major updates for now….ohhhh had all my post scans and they looked good…apparently I have a large fluid buildup that will probably have to be surgically drained (not just use a needle and suck it out like the last two times) at some point in the future but not right now since it’s not bothering me exorbantly…there was also something on the MRI that did something but they think it’s normal (I was a bit confused about what that was since one dr. told me it looked great and the other was like well there was a small descrepency but nothing to worry about…I don’t question anymore b/c frankly I can’t take anymore explainations or “bad news” soooooo I don’t ask and also b/c quite frankly my brain doesn’t keep up like it did 8 months ago…THAT’S and after effect of chemo I knew about and was frankly expecting)…anywho everything looks good except for this lump on my tummy.
Ciera turns 2 next Thursday (I can’t believe it!)…The b-day party is Sunday and I can’t wait…YAY! Anywho NOW I think that’s it
) I hope everyone had a great Thanksgiving and Black Friday! I did…great food (Daddy cooked…nuff said
)) which I actually could taste and had an appetite for (I love being post chemo) and then Dan and Chass and I went out at 4:30 this morning for Black Friday and got in at about noon…it was good fun all the way around (LOL except let me tell you shopping on Black Friday in a wheelchair is a challenge in and of itself LOL)…Love to all
) Peace out!
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