Reflections of The Heart

Johnna dictating to me:
 
Hi.  Home from surgery.  In A Lot. A Lot. A Lot (capitilize, underline, italicize, bold) of pain.  I wasn’t prepared for that.  They didn’t use stitches.  Instead they used 3 inx3in clear tape from the site of the port all the way up my neck.  They made two incissions.  One right above [...]

Happy Monday…MUGA today went great…again the tech’s at MMC are fantastic…Sarah was wonderful today!  Since I was there they also did my mold and my CT images for the radiation therapy so we were at the hospital for about 2 hours but hey not bad not bad at all…next step is getting my port put [...]

Happy Saturday All )  Ok so some fun and games for today…it is the weekend afterall.  Below is the fun…it’s a picture of kara, daniel, and i in late summer 1992…it’s horrible…omg thank god we got out of the 90’s…you can guess which twin is which if you want, but it’s so glaringly obvious [...]

Had my bone scan today…didn’t care for it…better than an MRI, but worse than the PET/CT…still felt very closed in and counted the whole 30 minutes b/c of it trying not to panic with my claustophobia…but made it through ok )  Go back on Monday for my MUGA whatever in the heck that is…feeling [...]

Hey kids…sorry so long on the update today…had a longer day than expected at the hospital…had my EKG, CT of the pelvis and PET today…all went well…just took longer than I thought it would…the tech (again way to go MMC techs…today’s was named Donald and he was fabulous!!!!) said that my tumor lit up like [...]

I think I’ve been awake a grand total of like 4 hours today…i’m just so tired and I don’t know why…i shouldn’t be this tired yet…heck we haven’t even started chemo…i was talking with mama earlier and she’s been emotionally up and down since the dr. appt on Monday as well…i just didn’t get the [...]

And today’s will probably be short too…A. I’m feeling sickly (like flu sickly…my niece had the flu last week so ( )…B. I don’t have much to say…I’m on a rollercoaster of emotions much more this week than I have been yet through out this so I’m pretty drained most of the time and [...]

I want to send a big shout out to the WSCC Women’s Small Group who meet at Kara’s on Thursday nights!  They ROCK!  I was blessed yesterday with lots of grinning faces, some totally awesome presents (including a humingbird feeder, homemade flower and butterfly cookie bouquet, all kinds of organizational material, fun games, fun books, [...]

Good morning all )  so post for today…Sarah Miller came to visit yesterday and sent about 8 hours with me )  yay Sarah…my step brother Robert also came by which was fabulous!  I forgot for a while why I was sitting in this chair!  It was fabulous!  A big thank you and I [...]

Literally…ok so here goes randomness
I LOVE Answers by Sarah McLaughlin…this link will take you to lyrics and a cool youtube of it being used for the movie Atonement.
Speaking of Sarah McLaughlin (whose music I LOVE btw) more randomness…when I came to after my biopsy as I was first waking up this song was playing in [...]

It’s been an…interesting last couple of weeks…I know in my last entry I mentioned the medical problems I’ve been facing recently…as an update on what’s going on…I had a biopsy on Tuesday and found out on Friday that I have synovial sarcoma, an agressive malignant tumor.  I don’t know too much else right now because [...]

I really do enjoy it even if no one ever reads it )  To see past thoughts by me please see my old blog (to which i cannot regain access b/c the email with which I subscribed to it is no longer available to me ( but the address is http://www.refoftheheart.blogspot.com.  I know [...]